This paper reports on a community-based initiative to enable the voice of frail older people to inform research and service development within the National Health Service (NHS) in England. A frail older adult in this paper refers to a person over 75, with some mobility issues and a wide range of health conditions and care needs. Patient and Public Involvement and Engagement (PPIE) in health and social care can be for the purpose of planning research and to understand the priorities of service users and here, both approaches were used [1]. The goal was to understand patient experience to generate research that improved services and produced better patient outcomes [2]. Involvement and engagement of a wide variety of older people was sought in a large provincial city in England, across a range of community settings. Group and individual meetings were arranged via key contacts and links with representative community leaders to access affluent and non-affluent areas as well as people from Black, Asian Minority Ethnic (BAME) Communities.
.There were some differences expressed within the participant groups in regard to communication, with members from the BAME community stating that assumptions were made in regard to their home support leading to a potential lack of formal services, something less likely to be stated by non BAME participants. Communication problems in general were expressed by many participants [31] regardless of ethnicity, and reflect similar problems raised by the adoption of D2A within a London Healthcare Trust, although these improved over time [32].
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